I just got a huge slap in the face from someone who I thought "got it" about CFS (www.cfidsassociation.org). She was my personal trainer several years ago. I am among the fortunate 5% of cfs patients who can exercise at all. Taking on a trainer was a bold and brave move on my part because of the cfs. I did my best to train her that I could not push myself, that I have to follow my body's lead. As a PT I know that went against her core, but she was as amiable as possible.
I won't go into details about the symptoms or reasons why exercise can be perilous or about post exertional malaise or CFS crashes.
Cut to the present. I'm 55 now (56 this month), my metabolism has slowed even more, my body has changed, etc. I hadn't talked to Nicole for a really long time, but I see her at the gym. I texted her a Happy New Year and an update that after 6 months on no gluten, low sugar, only 1600 calories a day, and exercising about 6 days a week---not one single pound lost. And that I decided to simply embrace my fatness.
She flagged me down at the gym today and we had a conversation. I couldn't believe what was coming out of her mouth. She was spewing the same thing at me that the rest of society thinks about us: we're lazy, we're liars, it's a psychological problem. But she was very kind and non-attacking or judgmental about it. She kept pushing me to exercise more, eat less, etc. etc. She simply could not "hear" me.
I left there feeling defeated, more alone, sad, depressed.
I told my daughter what happened and I instantly felt better because of her love and support.
Since Thanksgiving I have enjoyed the freedom of not having to count calories or worry about what I eat. And I haven't gained a single pound either.
I don't think I'll ever be able to shed this extra 25 lbs. due to my thyroid and cfs. Even doctors haven't been able to help me. I followed their protocols.
Mostly About My FOO (family of origin), And My Recovery From Them -- "If you know your mother doesn't tell you the truth, don't keep acting like she does." ~ Iyanla Vanzant "If you know that your father has a tendency to not honor his word, don't keep trusting he's going to do what he says he's going to do (just) because he's your father." ~ Iyanla Vanzant
2016 Update: I care more about this blog than I do that "they" can read it, otherwise I'd stop writing it and create a new one. As long as they finally leave me and my little family alone, there should be no problem, even though I requested that they don't read it. Since they have no interest in my writing, I'm probably safe. I hope so hard they will finally respect our wishes of no contact. I care so much about telling the truth and bringing healing. I fought my entire life to bring communication, truth, and healing to my FOO. There's nothing left to fight for so I have given up, at age 59. I can now only bring healing to myself and other survivors through my words. I finally went back to work on my heart-wrenching memoir that I wrote in 2012 that I originally wrote for them as my last Hope of getting my beloved family of origin and relatives back. But, There Are None So Blind As Those Who Will Not See
Tuesday, January 8, 2013
Sunday, January 6, 2013
Hello, my rebound blog!
I think I want to make a commitment to you (that is, to
myself), to post at least once a week. I’m ready to do this for myself to keep
tabs on myself because it helps me develop myself as a writer. I’m ready to put
the past behind me; the annihilation of my previous long-time blog, not be
concerned whether I have any readers or not, and just blog for ME.
Onto random thoughts today.
I never had Facebook, Twitter, a laptop, or a Smartphone!
I have a shared pc with my daughters, and I have my
long-time Alphie that I will always love. That’s my AlphaSmart word processor.
This is the year I finish my first book!
It’s actually going to happen!
What I’ll do with it, I don’t know, and it doesn’t
matter. It only matters that I wrote it because doing so saved my life.
I’m blessed to be part of momwriters.com. It’s sustained
me for over a decade—even longer than my previous blog. The women there never
judged me, never turned their backs on me, accept me exactly as I am.
Momwriters get to go quiet on the list without question. We “get it” because we
are all writers. We don’t have to be accountable to the list!
How I love MomWriters.
I’m almost 1-year-in as a Permanent Sobrietist! Which
will happen on my 56th birthday!
The reason I am anonymous on my blog is to hide-out from
my core family!
But perhaps in the near future I’ll be able to be
unconcerned whether they read my blog or not.
I’m also anonymous, don’t do Followers, or comments this
time because of my bad experience with my CFS community. It’s explained in
early posts. I may change my mind about that later too when I’ve done more healing.
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