2016 Update: I care more about this blog than I do that "they" can read it, otherwise I'd stop writing it and create a new one. As long as they finally leave me and my little family alone, there should be no problem, even though I requested that they don't read it. Since they have no interest in my writing, I'm probably safe. I hope so hard they will finally respect our wishes of no contact. I care so much about telling the truth and bringing healing. I fought my entire life to bring communication, truth, and healing to my FOO. There's nothing left to fight for so I have given up, at age 59. I can now only bring healing to myself and other survivors through my words. I finally went back to work on my heart-wrenching memoir that I wrote in 2012 that I originally wrote for them as my last Hope of getting my beloved family of origin and relatives back. But, There Are None So Blind As Those Who Will Not See

Monday, July 28, 2014

What "The Truth Shall Set You Free" Means To Me

I feel much lighter when I'm Honest with Myself about what I'm feeling. It's never about having to hear anyone's comments. It's about telling yourself the Truth. It brings it into the Light. It transmutes the darkness--which is not to be feared. I'm grateful I am finding my Voice more and more.

Sunday, July 27, 2014

The Other Side Of The Coin Of My Genuine Happiness

To my FOO and my non-CFS friends
I don't want this disease. I didn't ask for this disease. I can't cure this disease.
I can't pretend like this disease doesn't exist like most of humanity does. I pretend as often as I possibly can. I pretend I'm healthy to please you. And myself, for that matter.
I wish I could give you what you want and pretend like I don't have it all the time.
Then maybe you wouldn't be afraid to talk to me.
But for now, I'm spending another beautiful weekend just sitting alone and not pretending which is why I'm blogging. I am physically unable to do anything else today, just as most of my days.
I also watch TV, write, go on Facebook, and read when my impaired cognitive abilities and eyes allow.
I wish you could see me---no, I mean Really SEE me. Just Once. Just one time.
I wish you could care and send your love.
But you can't, for whatever reasons, or else you surely would.

ME ON A TYPICAL DAY


Saturday, July 26, 2014

Important On My Mind Today


This picture was posted on Facebook today. I shared it on my Timeline and wrote this caption:

To Humanity: Is that too much to ask? I'm there for you when you are ill. I ask you how you are doing and I listen to you. I offer you support and well wishes. I care. I believe you when you tell me you are sick. Why can't you do the same for me? I know the name of this disease sucks and is misleading, I know we don't look or sound ill, but if you would just ask me I would so gratefully explain all that. Love, The Millions With CFS/ME

 


16 1/2 years with this illness, and it does get lonely sometimes....... a lot.