I just got a huge slap in the face from someone who I thought "got it" about CFS (www.cfidsassociation.org). She was my personal trainer several years ago. I am among the fortunate 5% of cfs patients who can exercise at all. Taking on a trainer was a bold and brave move on my part because of the cfs. I did my best to train her that I could not push myself, that I have to follow my body's lead. As a PT I know that went against her core, but she was as amiable as possible.
I won't go into details about the symptoms or reasons why exercise can be perilous or about post exertional malaise or CFS crashes.
Cut to the present. I'm 55 now (56 this month), my metabolism has slowed even more, my body has changed, etc. I hadn't talked to Nicole for a really long time, but I see her at the gym. I texted her a Happy New Year and an update that after 6 months on no gluten, low sugar, only 1600 calories a day, and exercising about 6 days a week---not one single pound lost. And that I decided to simply embrace my fatness.
She flagged me down at the gym today and we had a conversation. I couldn't believe what was coming out of her mouth. She was spewing the same thing at me that the rest of society thinks about us: we're lazy, we're liars, it's a psychological problem. But she was very kind and non-attacking or judgmental about it. She kept pushing me to exercise more, eat less, etc. etc. She simply could not "hear" me.
I left there feeling defeated, more alone, sad, depressed.
I told my daughter what happened and I instantly felt better because of her love and support.
Since Thanksgiving I have enjoyed the freedom of not having to count calories or worry about what I eat. And I haven't gained a single pound either.
I don't think I'll ever be able to shed this extra 25 lbs. due to my thyroid and cfs. Even doctors haven't been able to help me. I followed their protocols.
Mostly About My FOO (family of origin), And My Recovery From Them -- "If you know your mother doesn't tell you the truth, don't keep acting like she does." ~ Iyanla Vanzant "If you know that your father has a tendency to not honor his word, don't keep trusting he's going to do what he says he's going to do (just) because he's your father." ~ Iyanla Vanzant
2016 Update: I care more about this blog than I do that "they" can read it, otherwise I'd stop writing it and create a new one. As long as they finally leave me and my little family alone, there should be no problem, even though I requested that they don't read it. Since they have no interest in my writing, I'm probably safe. I hope so hard they will finally respect our wishes of no contact. I care so much about telling the truth and bringing healing. I fought my entire life to bring communication, truth, and healing to my FOO. There's nothing left to fight for so I have given up, at age 59. I can now only bring healing to myself and other survivors through my words. I finally went back to work on my heart-wrenching memoir that I wrote in 2012 that I originally wrote for them as my last Hope of getting my beloved family of origin and relatives back. But, There Are None So Blind As Those Who Will Not See
Tuesday, January 8, 2013
Sunday, January 6, 2013
Hello, my rebound blog!
I think I want to make a commitment to you (that is, to
myself), to post at least once a week. I’m ready to do this for myself to keep
tabs on myself because it helps me develop myself as a writer. I’m ready to put
the past behind me; the annihilation of my previous long-time blog, not be
concerned whether I have any readers or not, and just blog for ME.
Onto random thoughts today.
I never had Facebook, Twitter, a laptop, or a Smartphone!
I have a shared pc with my daughters, and I have my
long-time Alphie that I will always love. That’s my AlphaSmart word processor.
This is the year I finish my first book!
It’s actually going to happen!
What I’ll do with it, I don’t know, and it doesn’t
matter. It only matters that I wrote it because doing so saved my life.
I’m blessed to be part of momwriters.com. It’s sustained
me for over a decade—even longer than my previous blog. The women there never
judged me, never turned their backs on me, accept me exactly as I am.
Momwriters get to go quiet on the list without question. We “get it” because we
are all writers. We don’t have to be accountable to the list!
How I love MomWriters.
I’m almost 1-year-in as a Permanent Sobrietist! Which
will happen on my 56th birthday!
The reason I am anonymous on my blog is to hide-out from
my core family!
But perhaps in the near future I’ll be able to be
unconcerned whether they read my blog or not.
I’m also anonymous, don’t do Followers, or comments this
time because of my bad experience with my CFS community. It’s explained in
early posts. I may change my mind about that later too when I’ve done more healing.
Friday, November 23, 2012
Decisions, decisions, decisions
I'm not warmed-up to my rebound blog yet. This one; this is my rebound blog. I don't know if I want to keep it and turn it into something I'm proud of like my original blog that I felt forced to annihilate or not. Seems like rebound blogs are much like rebound relationships!
While I'm pondering, I will post how perfect my Thanksgiving was! It was the best Thanksgiving I can remember in a long time---on all fronts: My little family of four, my core family, my love relationship. I even got creative in the kitchen, and it was a delicious success!
My little family of four and I had a really awesome day. I'd write a lot more about it, BUT, as usual, I'm about to be run off our one pc by my oldest daughter! Ohhh for a laptop! Santa? Please? No? Not yet? OK. *sigh*
One of the highlights of this holiday was being totally removed from my family of origin! I will have to write a page about that one of these days; should I keep this blog and try to generate readers! But wow, let me just say how utterly relaxed, un-stressed, and joyful I felt all day long knowing I was not going to be talking to them. WOW. What a loaded statement. But it's OK. I know they are all very happy.
Take care, all! Gotta go!
While I'm pondering, I will post how perfect my Thanksgiving was! It was the best Thanksgiving I can remember in a long time---on all fronts: My little family of four, my core family, my love relationship. I even got creative in the kitchen, and it was a delicious success!
My little family of four and I had a really awesome day. I'd write a lot more about it, BUT, as usual, I'm about to be run off our one pc by my oldest daughter! Ohhh for a laptop! Santa? Please? No? Not yet? OK. *sigh*
One of the highlights of this holiday was being totally removed from my family of origin! I will have to write a page about that one of these days; should I keep this blog and try to generate readers! But wow, let me just say how utterly relaxed, un-stressed, and joyful I felt all day long knowing I was not going to be talking to them. WOW. What a loaded statement. But it's OK. I know they are all very happy.
Take care, all! Gotta go!
Monday, August 27, 2012
From the brilliant mind of Aaron Sorkin
Republicans and Democrats alike ought to appreciate/resonate:
“
- Ideological purity
- Compromise as weakness
- A fundamentalist belief in scriptural literalism
- Denying science
- Unmoved by facts
- Undeterred by new information
- A hostile fear of progress
- A demonization of education
- A need to control women's bodies
- Severe xenophobia
- Tribal mentality
- Intolerance of dissent
- Pathological hatred of the US government
They call themselves the Tea Party. They call
themselves conservatives. They call themselves Republicans, though Republicans
certainly shouldn't. We should call them what they are: The American Taliban.
And the American Taliban cannot survive if Dorothy Cooper is allowed to
vote.”
~ Will MacAvoy, News Anchor on the HBO series, The
Newsroom (season finale). The show took place in August 2011. Written by Aaron Sorkin
Last sentence referring to the 96-year-old
woman (black) who has been voting for 75 years and now can't vote because she
doesn't have a car, ie: no voter ID.
W O W
What open-hearted individual hasn't realized that the Middle Eastern Taliban... that we are just like them, that is, that we have it in us to be just like them? We have it in us to be like Hitler. In other words, we are all human, and have it in us to live in Love or live in Fear to any extreme.
Saturday, August 25, 2012
If anybody is listening...
There could be genuine health healing help here! That's what I tried to tell people at my last blog, but alas, as I explained in previous posts, my 41 so-called followers didn't comment. And now I have even more health healing help, but they don't even know I'm here. I tell you, if I get well from the incurable CFS, I will have reason to visit their blogs, identify my blog to them, and share the secret. It's the least I can do for alienating them by ignorantly (accidentally) encouraging them to exercise. For me, slowly, painfully starting exercise was helpful. Little did I know that only 5% of us can do that.
It's scientifically and medically reasonable for me to assume that getting off the Synthroid and on NatureThroid, taking Iodoral (iodine/iodide), using Celtic Sea Salt (unrefined), and making a few dietary and supplement changes will bring me mass quantities of healing!
After 14 1/2 years of searching for answers and trying everything under the sun---even went so far as to try hyperbaric chamber therapy once---it could come down to simply replacing a needed nutrient my body is apparently grossly deficient in: iodine.
I will tell everyone to read Dr. Brownstein's books or watch his DVDs about iodine, thyroid, and salt "when" this works for me! I'm afraid we'll all have to be patient though. For those as ill from autoimmune diseases as me it can take a couple years or more to get better.
www.drbrownstein.com
It's scientifically and medically reasonable for me to assume that getting off the Synthroid and on NatureThroid, taking Iodoral (iodine/iodide), using Celtic Sea Salt (unrefined), and making a few dietary and supplement changes will bring me mass quantities of healing!
After 14 1/2 years of searching for answers and trying everything under the sun---even went so far as to try hyperbaric chamber therapy once---it could come down to simply replacing a needed nutrient my body is apparently grossly deficient in: iodine.
I will tell everyone to read Dr. Brownstein's books or watch his DVDs about iodine, thyroid, and salt "when" this works for me! I'm afraid we'll all have to be patient though. For those as ill from autoimmune diseases as me it can take a couple years or more to get better.
www.drbrownstein.com
Wednesday, August 15, 2012
69 Most Commonly Reported Symptoms of Hypothyroidism
In other words, doctors have got to stop going solely by TSH lab test results!
I have had most of these for 20 years on Synthroid, they were getting worse, and NO DOCTOR in my history listened.
...When all we need is NatureThroid and/or iodine, apparently. (www.drbrownstein.com)
I have had most of these for 20 years on Synthroid, they were getting worse, and NO DOCTOR in my history listened.
...When all we need is NatureThroid and/or iodine, apparently. (www.drbrownstein.com)
| o Fatigue | o Swelling of eyelids | o Emotional instability |
| o Lethargy | o Dry skin | o Choking sensation |
| o Low endurance | o Dry mucous membranes | o Fineness of hair |
| o Slow speech | o Constipation | o Hair loss |
| o Slow thinking | o Weight gain unexplainably | o Blueness of skin |
| o Poor memory | o Paleness of lips | o Dry, thick, scaling skin |
| o Poor concentration | o Shortness of breath | o Dry, coarse, brittle hair |
| o Depression | o Swelling | o Paleness of skin |
| o Nervousness | o Hoarseness | o Puffy skin |
| o Anxiety | o Loss of appetite | o Puffy face or eyelids |
| o Worrying | o Prolonged menstrual bleeding | o Swelling of ankles |
| o Easy emotional upset | o Heavy menstrual bleeding | o Coarse skin |
| o Obsessive thinking | o Painful menstruation | o Brittle or thin nails |
| o Low motivation | o Low sex drive | o Dry ridges down nails |
| o Dizziness | o Impotence | o Difficulty in swallowing |
| o Sensation of cold | o Hearing loss | o Weakness |
| o Cold skin | o Rapid heart rate | o Vague body aches & pains |
| o Decreased sweating | o Pounding heart beat | o Muscle pain |
| o Heat intolerance | o Slow pulse rate | o Joint pain |
| o Non-restful sleep | o Pain at front of chest | o Numbness or tingling |
| o Insomnia | o Poor vision | o Protrusion of one or both eyeballs |
| o Thick tongue | o Weight loss | o Sparse eyebrows |
| o Swelling of face | o Wasting of tongue |
Thursday, August 9, 2012
Brighter Days!
Every day that passes brings new hope for a healed life! I'm talkin' physically, emotionally, mentally and spiritually!
I feel so incredibly on the right path these days. Purging SO many toxic things and people from my life is paying off.
A major focus in my life is healing my health. I seem to be making even more progress in self-healing the "incurable, untreatable" chronic illness of Chronic Fatigue Syndrome. Was stricken 14 1/2 long years ago.
ALL the information regarding my journey was in my old blog, but it's gone forever. It was truly necessary though to annihilate it. It was the only way I could get a full, clean break from my family of origin.
I will post soon about how getting off of toxic Synthroid and on NatureThroid for low thyroid , and how getting off gluten and other things is dramatically improving my health!
Meanwhile, absolutely every person on the planet, please, please get Dr. Brownstein's DVD or book about thyroid (and also about iodine) at his website: www.drbrownstein.com, and also read-up on these matters at Dr. Mercola's website: www.mercola.com.
Dr. Brownstein said that he's never seen a CFS patient that didn't have a thyroid imbalance. He has studied the thyroid and iodine for 20 years, he's treated 5000 patients. I learned about him from a source I trust. Since the conventional tests for the thyroid are incomplete, he diagnoses per his patient's symptoms, medical history, and basal temperature.
Nap time...
(so unusual and wonderful to make it this late in the day without needing one!) (and I've done the previously impossible today: made the long trek to Whole Foods to grocery shop in energy-draining heat, put the groceries away, fixed a nutritious lunch, sun bathed, took a shower, washed my hair, and wrote a post. Up until now all I could have accomplished in the above was the shopping trek and a quick lunch before I'd be depleted and needing a nap.)
I feel so incredibly on the right path these days. Purging SO many toxic things and people from my life is paying off.
A major focus in my life is healing my health. I seem to be making even more progress in self-healing the "incurable, untreatable" chronic illness of Chronic Fatigue Syndrome. Was stricken 14 1/2 long years ago.
ALL the information regarding my journey was in my old blog, but it's gone forever. It was truly necessary though to annihilate it. It was the only way I could get a full, clean break from my family of origin.
I will post soon about how getting off of toxic Synthroid and on NatureThroid for low thyroid , and how getting off gluten and other things is dramatically improving my health!
Meanwhile, absolutely every person on the planet, please, please get Dr. Brownstein's DVD or book about thyroid (and also about iodine) at his website: www.drbrownstein.com, and also read-up on these matters at Dr. Mercola's website: www.mercola.com.
Dr. Brownstein said that he's never seen a CFS patient that didn't have a thyroid imbalance. He has studied the thyroid and iodine for 20 years, he's treated 5000 patients. I learned about him from a source I trust. Since the conventional tests for the thyroid are incomplete, he diagnoses per his patient's symptoms, medical history, and basal temperature.
Nap time...
(so unusual and wonderful to make it this late in the day without needing one!) (and I've done the previously impossible today: made the long trek to Whole Foods to grocery shop in energy-draining heat, put the groceries away, fixed a nutritious lunch, sun bathed, took a shower, washed my hair, and wrote a post. Up until now all I could have accomplished in the above was the shopping trek and a quick lunch before I'd be depleted and needing a nap.)
Tuesday, August 7, 2012
Twiddling my thumbs
First of all.... too torturous that it's already over 80 degrees inside at 10 a.m. I don't do well in the heat. I'll put the A/C on soon and have to close-up the house. Waah. I'm an open-windows, open-door, fresh air kind of a girl.
The plumber is here fixing a real mess in the adjoining bathroom sinks, and the only place in the house for me to hang-out is at the pc in our makeshift office behind a partition in the living room. Normally, I'd be on "My Throne" -- my bed -- watching TV or reading or writing via my AlphaSmart word processor. I feel out of my comfort zone, and this will probably take hours. He's also got to flush the HALO---the whole house filtration system, and the water heater.
I'm already weary from being up for several hours, and cleaning the house for the plumber. I need to rest, but can't.
So, I'm mindlessly blogging.
Eddie is a really great plumber. He's from the Ukraine. We got lucky when Rescue Rooter sent him to our house one day a year ago to fix a plumbing problem. (We have lots of plumbing problems in this old house that have cost us near $20K in 15 years.) I adopted him as our plumber and request him every time I call RR. He is the sweetest, funniest, most generous man. I tip him $20 each time he performs his miracles on our crazyass plumbing problems. And he always throws-in some freebie of sorts. Today his freebie for us is replacing the corroded sink trap---the one that my ex-husband-to-be ought never have removed! Poor Eddie. He's got a big job snaking out the crud in the pipes, and trying to put back that trap that got damaged when my ex removed it. Must be frustrating for plumbers to clean up other people's messes when they try to be their own plumber! What is actually needed is to tear out the wall and replace the pipes. They are iron pipes connected to brass which causes uber corrosion. They don't use those materials anymore.
This is going to cost us money we absolutely do not have at this time. Tough economic times made tougher by us having to pay a mortgage and a rent on a single income. We're doing the girls college entirely on student loans... that is, until and if they say "No mo money for you!" <gulp>
I've done all my online business for the day: emails, etc. Don't have much else to do... um, unless you consider working on my book something to do! It's funny though, I never compose my book on the pc, only on my Alphie from My Throne. I might have no choice but to try once I get bored here and run out of things to ramble about...
Which appears to be now!
The plumber is here fixing a real mess in the adjoining bathroom sinks, and the only place in the house for me to hang-out is at the pc in our makeshift office behind a partition in the living room. Normally, I'd be on "My Throne" -- my bed -- watching TV or reading or writing via my AlphaSmart word processor. I feel out of my comfort zone, and this will probably take hours. He's also got to flush the HALO---the whole house filtration system, and the water heater.
I'm already weary from being up for several hours, and cleaning the house for the plumber. I need to rest, but can't.
So, I'm mindlessly blogging.
Eddie is a really great plumber. He's from the Ukraine. We got lucky when Rescue Rooter sent him to our house one day a year ago to fix a plumbing problem. (We have lots of plumbing problems in this old house that have cost us near $20K in 15 years.) I adopted him as our plumber and request him every time I call RR. He is the sweetest, funniest, most generous man. I tip him $20 each time he performs his miracles on our crazyass plumbing problems. And he always throws-in some freebie of sorts. Today his freebie for us is replacing the corroded sink trap---the one that my ex-husband-to-be ought never have removed! Poor Eddie. He's got a big job snaking out the crud in the pipes, and trying to put back that trap that got damaged when my ex removed it. Must be frustrating for plumbers to clean up other people's messes when they try to be their own plumber! What is actually needed is to tear out the wall and replace the pipes. They are iron pipes connected to brass which causes uber corrosion. They don't use those materials anymore.
This is going to cost us money we absolutely do not have at this time. Tough economic times made tougher by us having to pay a mortgage and a rent on a single income. We're doing the girls college entirely on student loans... that is, until and if they say "No mo money for you!" <gulp>
I've done all my online business for the day: emails, etc. Don't have much else to do... um, unless you consider working on my book something to do! It's funny though, I never compose my book on the pc, only on my Alphie from My Throne. I might have no choice but to try once I get bored here and run out of things to ramble about...
Which appears to be now!
Subscribe to:
Posts (Atom)